May 30, 2009 – Today was rough for all of us. I stayed with Alexandra last night, and we were up quite a bit. She seemed to experience a lot more pain today, and we couldn’t seem to do anything right for her. Naturally, it is very frustrating for us to not be able to console her and for her to not know what to do with herself. She wanted to go nighty night and then wanted to be held only to want to be put back down again. Then she would toss and turn, and the process would start all over again!
Part of the problem is that she now has fluid in her right lung. They have increased the diuretics to, hopefully, get rid of the fluid. Until it is gone, they will continue to monitor the situation and take x-rays each day. When taking one of her medicines earlier today, she vomited all over the place which required a shower. While she was not happy about getting sick or being out of bed, she did seem to enjoy the shower, as she loves taking showers with Mommy at home.
They had to double her pain medication. Once they did that, she was much more comfortable, and we caught just a glimpse of our sweet, funny child. She took another wagon ride today, and we were able to get her to walk around just a bit. Unfortunately, a few steps wiped her out like she had just run a marathon!
She still isn’t eating, but she did drink a lot more milk and water today and really liked the lemonade I found for her. I’m hopeful that she will want a little food tomorrow.
We continue to see so many other children with various illnesses between the hospital and Ronald McDonald House and feel blessed that Alexandra is doing so well.