One night while getting Alexandra ready for bed, we started talking about things that happened before she was born. About the third time I told her that she had not been born yet when something had taken place, she looked at me and said, Mommy, you would be sad if I wasnt here! Those words rang in my head after her cardiology appointment that following week.
Alexandra has had a leaky aortic valve, but we had been told that after the third surgery it would most likely be better. For all this time, that had seemed to be the case; however, after this last cardiology appointment, the Doctor said it had gotten worse. We felt like we had been punched in the gut! Things had been going along so well and then all of a sudden here we were being faced with the reality that things dont always go well with CHD babies. During all of her surgeries, I kept it together, but this time, I had a true pity party for several days. It was just so disheartening to think of her having any setback after she has been doing so well.
The Doctor increased one of her medications and is hopeful, as are we, that the increased dosage will lessen the leakage so no further action will be necessary at this point. Unfortunately, we have to wait until July for her next appointment to give the medicine some time to work if its going to. So, until then, we wait and we pray!