Alexandra had a great cardiology appointment yesterday. The fluid around her heart seems to have finally disappeared, and her cardiologist has cut her diuretics even further. She has been on one of them twice a day since she was diagnosed at 11 days old, and now she only has to take it once a day. We are thrilled that she is needing less and less medicine!
We also received approval for her to ride in the 4th of July parade. She remembers balloons and waving at everyone from last year and is excited about doing it again this year! However, we will not participate in any of the other activities throughout the day as we usually do.
We have never been people to ask for or accept help, but after the last month or so, we have been grateful for the many offers of assistance from family and friends. Friends and neighbors have run errands for us, and TenderHearts support group and church members have provided meals. I’m now a firm believer that you need to accept offers of help, as you simply cannot do everything yourself!