Alexandra’s results came back a little better today. While she still has fluid around her heart, she seems to be tolerating it well, so they are discharging us to Ronald McDonald House. It is a little bittersweet, and I have been quite emotional today. Naturally, I’m thrilled that she is doing so well that we are leaving the hospital, but I’m so sad for those children who still have no end in sight. It’s very hard having your child play with these children or talk to the older ones for the last several weeks, and knowing that their future may not be as bright.
Alexandra is very excited about going to “Old McDonald’s House!” We’re still trying to explain that Old McDonald had a farm and that we are actually going to Ronald McDonald’s House! She has been talking about it for the last week or so that when she got better she could go there and play. We’re happy she can finally do it!
On Monday, we will come back for a series of tests and possibly be released to go home early in the week. We can’t wait!