There were no tests today, so Alexandra had a full day of playing in the playroom and having fun with the nurses. When one nurse called her Alex, she quickly stated “I go by Alexandra!” She also helped the nurses take her vitals by pointing out which came next and what body part was to be used. She has certainly kept them on their toes!
Another, as I like to call them, “one weeker” was discharged today. It’s always great to see someone do well and get out of here early, but it still makes us wonder why we are still here after three weeks!
Tomorrow we have a full day of testing, and the results will determine if we need to stay here longer or if we will be discharged to Ronald McDonald House and just come in for outpatient testing next week. We are very hopeful it will be the later, as it will be nice to have the whole family together overnight again as well as cut down on the running back and forth. It will also be fun for Alexandra to be back at Ronald McDonald House where she can participate in the many fun activities they have each evening after dinner.