Today was a good day! After a suppository last night, Alexandra began to have poopy diapers which made a tremendous difference in all areas. She was much more like herself today even smiling some, which made us very happy. She took a couple of wagon rides and ate bits of ice cream, cheeseburger, yogurt, potato chips, goldfish and part of a smoothie. It was great seeing her eat and not be in pain all day.
Her pleural effusions are not better yet but certainly not worse. However, her sodium levels came up, and she is definitely feeling better.
Tonight at Ronald McDonald House, we met a family whose son is going in for his Fontan on Friday. I really felt for them, knowing what they may have to go through over the next couple of weeks! We assured them that we would be available for them if they needed to talk through anything. It’s so important for the families going through this to have someone to talk to who know exactly what they’re going through! I know it helped us tremendously when we found someone who had gone through this before us!
We are quite sure we will move to the CCU tomorrow and look forward to doing so now that we are comfortable that she is ready and we are not doing it to free a bed!