Today has been one of ups and downs. Alexandra is doing very well but has had some very uncomfortable, cranky moments. Apparently, during the night, she ripped out her arterial line, so they had to restrain her so she wouldn’t pull out anything else important. She is showing her feisty side, which first appeared during her first surgery over two years ago!
When she first saw us when she woke up this morning, she immediately demanded that I take her. Unfortunately, I couldn’t since she was still hooked up to too many things; however, later in the afternoon, I was able to hold her which made her and me feel much better.
We were actually moved to the CCU this afternoon, after a confusing temporary move into a quad room typically reserved for small babies. We had no sooner arrived at the new temporary room than we were kicked out because they had to do a procedure on a baby who ended up being rushed back to the operating room. Episodes like that remind you how very lucky you are that your child is doing so well!
While we had to be away from her, I walked down the hall and was surprised at how many nameplates there were with babies who were unnamed…”Baby Boy Smith,” etc. It really bothered me to see that. I’m sure the parents have their reasoning as to why the baby is not named, but it is disturbing to me just the same.
While things are going well, the whole experience is so draining emotionally and physically. However, we push on, knowing that things are only going to get better from here!
Hello Lisa –
When Collin was med-i-vaced to CHOP right after he was born, they gave him a name plate that said “Baby Boy”, when I arrived I demanded that they put his name on the nameplate – he had his name since before he was born! So, I don’t think that they do that because the babies are not named, I think it is more of an admin thing to get the right names posted. At least that was the case with us.
I was surprised that Alexandra was moved out of CICU so quickly, we were in CICU for several days post surgery. But, I am hoping that this means that she is doing very well!
I know how draining all of this is, and I am sending strength your way…virtually, and I hope that you can feel it.
Call me if you need to chat…I don’t have your cell number, only Jeff’s. Feel free to give me a call anytime. And give Alexandra a kiss from me.
Hang in there, you are doing a GREAT job! Keep us posted if there is anything we can do from here, or anything that we can send up to you.
Lots of Love and Hugs – Beckie